Annual Cystic Fibrosis fundraiser draws hundreds
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Annual Cystic Fibrosis fundraiser draws hundreds
6 months ago
MSNWGRZ-TV Buffalo
Seattle family leads 'Great Strides' walk to fight cystic fibrosis through community and hope
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Seattle family leads 'Great Strides' walk to fight cystic fibrosis through community and hope
2 weeks ago
MSNKING-TV Seattle
Confused on how gene editing could be used for people living with cystic fibrosis? Watch this animation to get a better understanding of how this technology might one day be used to edit mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that causes CF. | Cystic Fibrosis Foundation
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Confused on how gene editing could be used for people living with cystic fibrosis? Watch this animation to get a better understanding of how this technology might one day be used to edit mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that causes CF. | Cystic Fibrosis Foundation
5.1K viewsApr 26, 2022
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CFTR modulators like Trikafta represent great progress in addressing the underlying cause of cystic fibrosis — but they do not cure the disease, and not everyone can benefit. Like Gina Ruiz, a 29-year-old living with CF who has two nonsense mutations. She shares her experience and some misconceptions about the disease. Learn more facts about CF: https://www.cff.org/intro-cf/dispelling-misconceptions-about-cystic-fibrosis | Cystic Fibrosis Foundation
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CFTR modulators like Trikafta represent great progress in addressing the underlying cause of cystic fibrosis — but they do not cure the disease, and not everyone can benefit. Like Gina Ruiz, a 29-year-old living with CF who has two nonsense mutations. She shares her experience and some misconceptions about the disease. Learn more facts about CF: https://www.cff.org/intro-cf/dispelling-misconceptions-about-cystic-fibrosis | Cystic Fibrosis Foundation
4.3K viewsMay 21, 2024
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If it’s hard to explain CF to your family and friends why you look ok on the outside but not on the inside, watch and share this video to see how lungs normally work, and how CF can affect the lungs over time. Learn more about the basics of lung care: http://on.cff.org/2rZ5tK0 | Cystic Fibrosis Foundation
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If it’s hard to explain CF to your family and friends why you look ok on the outside but not on the inside, watch and share this video to see how lungs normally work, and how CF can affect the lungs over time. Learn more about the basics of lung care: http://on.cff.org/2rZ5tK0 | Cystic Fibrosis Foundation
416.2K viewsMay 25, 2017
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What is Cystic Fibrosis? — Claire's Place Foundation
What is Cystic Fibrosis? — Claire's Place Foundation
Apr 8, 2021
clairesplacefoundation.org
Because of you, we imagine what's possible. Because of you, we are making new connections. Because of you, we continue to push the boundaries. Because of you, we are stronger together. | Cystic Fibrosis Foundation
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Because of you, we imagine what's possible. Because of you, we are making new connections. Because of you, we continue to push the boundaries. Because of you, we are stronger together. | Cystic Fibrosis Foundation
108K viewsJul 2, 2019
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For all those living with cystic fibrosis, we dream of the day that CF stands for “Cure Found.” | Cystic Fibrosis Foundation
124K viewsDec 12, 2018
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Happy Mother's Day! Today we want to shout out all moms in the cystic fibrosis community, including KC White, an adult with CF who serves as chair of the CF Foundation's Board of Trustees. On this special day, her son, Mac, shares a special tribute to her. | Cystic Fibrosis Foundation
1.8K viewsMay 10, 2024
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Diagnosed at birth with cystic fibrosis, Azer Russell, 18, grew up experiencing gastrointestinal issues from reflux to dehydration. In this video, Azer, and his mom, Lydia, shared how they worked with Azer’s care team to better manage his GI symptoms. | Cystic Fibrosis Foundation
4.3K viewsApr 27, 2022
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To every volunteer in the cystic fibrosis community: Thank you! By advocating, researching, connecting, and fundraising, you never stop supporting people with cystic fibrosis. While we all volunteer in different ways, we are connected by one mission. We are grateful for everything you do! | Cystic Fibrosis Foundation
2.1K viewsApr 26, 2024
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Every day, the cystic fibrosis community achieves new milestones—from climbing up a flight of stairs, to graduating high school, growing families, and so much more. This CF Awareness Month, let's celebrate each and every achievement together. | Cystic Fibrosis Foundation
18.1K viewsMay 29, 2020
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Life with cystic fibrosis looks different for everyone. As a member of Community Voice, you can help research and care keep pace with the life you’re living and support a better future for everyone with CF. By participating in online surveys, focus groups, and committees, you contribute to a more complete picture of what living with CF looks like today. We want to hear from as many people as possible to truly meet the various needs of the CF community. Join Community Voice today: https://on.cff.
1.2K views10 months ago
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Clinical trials are the path, our path, to a cure. Join us, and learn more about how you can become a trailblazer: http://on.cff.org/trailblazer | Cystic Fibrosis Foundation
109.6K viewsNov 6, 2017
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We will not stop until a cure is found for all people with cystic fibrosis. Help add tomorrows by giving today. | Cystic Fibrosis Foundation
93.3K viewsDec 14, 2017
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This year, we celebrated a big milestone: the 30th anniversary of Great Strides! Ryan Monahan, an adult living with cystic fibrosis and one of the Great Strides national ambassadors, shares a special message for every volunteer and walker who joined us this year. | Cystic Fibrosis Foundation
8.5K viewsNov 19, 2018
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We want to hear from you: What’s your hope for the CF community? Whether you or your loved one has CF, you’re a healthcare provider, researcher, or otherwise supporting the quest for a cure, leave us a comment below with your #MyCFHope for the future. You are critical to our progress. Give today and help make these hopes a reality. https://on.cff.org/givehope | Cystic Fibrosis Foundation
46.8K viewsDec 16, 2019
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Working together with the cystic fibrosis community for 65 years, we have made unparalleled progress focused on a shared mission: to cure CF and provide all people with CF the opportunity to lead long, fulfilling lives. Today, our most important and challenging work is ahead of us. Mike Boyle, President and CEO, shares the Foundation’s vision for the future, and our top priorities for the next five years as we work to advance our mission and make CF stand for Cure Found. Learn more about the Fou
12.7K viewsJan 8, 2020
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When Annie was born in 1953 and diagnosed with cystic fibrosis by Dr. Dorothy Andersen, she was given one year to live. At the time, no one had heard of the disease, including doctors. Her mother, Doris Tulcin, found that unacceptable and “got to work.” Two years later, Doris and other parents formed the Cystic Fibrosis Foundation. They formed chapters, created a care center network, connected with other nonprofit organizations, and from there, grew. Today, Doris reflects on how far we have come
43.6K viewsMay 18, 2020
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How have people with cystic fibrosis who have COVID-19 been doing? Our president and CEO, Mike Boyle, MD, provides an update of what we have learned. Have a question about CF and COVID-19? In this series experts from the CF Foundation and the CF care community will answer the top questions we are receiving. Submit your questions in the comments below. For more on CF and COVID-19: http://on.cff.org/COVID-19 | Cystic Fibrosis Foundation
39K viewsApr 8, 2020
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Celebrating a birthday. Going to prom. Graduating from college. Starting a career. Getting married. People with cystic fibrosis are living longer than ever before and achieving dreams of all kinds. But we’re not finished yet. We can’t stop until there’s a cure for CF. Your involvement is critical to our progress. Give today and help make dreams come true: https://on.cff.org/give | Cystic Fibrosis Foundation
170.3K viewsDec 7, 2018
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Cystic fibrosis can present itself in many ways and with different symptoms. Early in life, children with CF may exhibit few or no symptoms. In addition, symptoms may vary with age, disease severity, or what mutations the individual with CF has. In this video, clinicians explain how cystic fibrosis affects different parts of the body. | Cystic Fibrosis Foundation
7K viewsApr 14, 2022
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For the cystic fibrosis foundation. #cff.org. Please help, thank you. | Sylvester Stallone
457.9K viewsMay 27, 2016
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Don’t miss your chance to enter our BreatheCon swag design contest! Adults with cystic fibrosis, submit your original design, like those pictured, by September 15 for a chance to see your creative work featured on our 2024 BreatheCon swag. The winning design will be chosen by the CF community. Submit your design today: https://on.cff.org/BreatheConSwagContest | Cystic Fibrosis Foundation
697 viewsSep 14, 2023
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We're more than a month into 2024, and there is still so much more to come! Eileen McConville, a mother of an adult with cystic fibrosis, shares what she is most excited about for this year. | Cystic Fibrosis Foundation
2.6K viewsFeb 19, 2024
FacebookCystic Fibrosis Foundation
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Today we walked the Cystic Fibrosis Foundation #GreatStrides 5K for my husband Caleb — diagnosed with cystic fibrosis at just one year old, and now, at almost 35, he’s defying the odds. Thanks to groundbreaking treatment like Trikafta, Caleb’s quality of life has dramatically improved — allowing him to sustain our home and live the life we once only dreamed of. The Cystic Fibrosis Foundation’s mission — to cure CF and ensure all those with the disease can live long, fulfilling lives — is why we
10.6K views6 months ago
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“The gratitude I have for every single person that has ever been involved with the Cystic Fibrosis Foundation, I am forever, forever indebted to them.” As we celebrate 65 years of progress, Margarete and Marc Cassalina share stories from the more than 20 years they’ve been involved with the Foundation – from their initial phone call with the Greater New York chapter to the discovery of new treatments and their gratitude for the cystic fibrosis community. | Cystic Fibrosis Foundation
7.1K viewsNov 16, 2020
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When the Foundation was formed in 1955, people born with cystic fibrosis weren’t expected to live to attend kindergarten. Thanks to decades of progress, life expectancy has risen dramatically, with increases in the adult population across all age categories. Today, there are more than 3,000 people with CF age 50 and older, and more than 20,000 people with CF age 18 and older. No matter where you are in your CF journey, we remain focused on supporting people with CF as they face age-related healt
47.2K views10 months ago
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Local events support cystic fibrosis research
4 weeks ago
MSNKING-TV Seattle
1:06
New AI breakthrough targets cystic fibrosis protein
2 months ago
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