Cystic Fibrosis Foundation16d
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...
Cystic Fibrosis Foundation16d
FDA Approves Trikafta for 94 Additional Rare CFTR Mutations
The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...
Cystic Fibrosis Foundation16d
Finding Strength in the CF Community
I felt emotionally and physically unprepared to navigate my daughter’s cystic fibrosis diagnosis while managing my mental health. However, connecting with other families in the CF community, along ...
Cystic Fibrosis Foundation17d
The Unexpected Aftermath of CF-Related Liver Disease
I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...
Cystic Fibrosis Foundation19d
Why Taking Care of Myself Is the Best Thing I Can Do for My Daughter
Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...
Cystic Fibrosis Foundation23d
My Spiritual Journey With CF
This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...
Cystic Fibrosis Foundation27d
Survey Highlights the Burden of Health Care Costs on the CF Community
Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...
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Give Monthly
Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...
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Delaware Valley Chapter - Philadelphia Office
The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
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Arkansas/West Tennessee Chapter - Little Rock and Northwest Office
The Arkansas/West Tennessee Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter has offices in Little Rock, Northwest Arkansas, and Memphis. We cover the state of Arkansas and western ...
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North Central Florida Chapter
The North Central Florida Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers the Orlando and Jacksonville areas. Volunteers are the key to our success and the lifeblood of our ...