Being a mom with cystic fibrosis has brought many highs and lows — especially while navigating two double-lung transplants. Over the years, I’ve learned many lessons about what it means to parent ...

When I received a lung transplant as a child, I didn’t realize the trauma from that experience would follow me well into adulthood.

I tried to put school and work first, convincing myself my CF could wait. That is, until an infection stopped me in my tracks, leaving behind physical, emotional, and financial consequences.

My sister and I have shared so much — childhood joys, crowded bathrooms, and now, the fight for those still waiting for the promise of CFTR modulators.

People with cystic fibrosis and their families have faced significant cost burdens due to copay accumulator programs. Get caught up on these programs and what they mean for you and your loved ones.

Growing up with CF made school challenging — not only because of hospitalizations and absences, but also because my teachers and classmates often didn’t understand what cystic fibrosis was.

I feel lucky to have finally received my CF diagnosis as an adult — but I often think of my sister, who lived a lifetime of illness without ever getting the answers she deserved.

Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.