The aims of this study were to determine which consent procedure patients prefer for use of stored tissue for research purposes and what the effects of consent procedures on actual consenting ...

Matthew Brzica and his wife hardly noticed when the hospital took a few drops of blood from each of their four newborn children for routine genetic testing. But then they discovered that the state had ...

Modern biobanking efforts consist of prospective collections of tissues linked to clinical data for patients who have given informed consent for the research use of their specimens and data, including ...

Right now, tissues belonging to millions of Americans are being used in scientific research without patients’ consent. That’s because a rule designed long before genetic analysis was able to ...

Informed consent documents explain to potential participants the information that a reasonable person would want to have in order to make an informed decision about whether to participate. Using this ...

Should scientists be allowed to study your biological specimens — such as blood, urine or tissue samples — if you haven’t expressly given them permission?Bioethicist Holly Fernandez Lynch explains why ...

WASHINGTON — Scientists are warning that a new proposal by the Obama administration could stifle medical research and undermine major initiatives being pursued by the White House. The controversial ...