LINCOLN, Neb. (KOLN) — This weekend, hundreds of people gathered in Lincoln for a conference dealing with Batten Disease. It’s rare, it’s always deadly — and there is still no cure — affecting only a ...

CHAPEL HILL, N.C. (WTVD) -- A father and mother in Chapel Hill are sharing their painful family story to raise awareness about a rare disease. It's a journey that began with unimaginable grief but led ...

LINCOLN, Neb. (KOLN) — Despite the unrelenting rain Saturday morning, dozens of friends, family and supporters gathered at Eagle Elementary for a 5K run/walk to support a member of their own community ...

Disclaimer: This article is for informational purposes only and should not be considered a substitute for professional medical advice, diagnosis, or treatment. Always seek advice from qualified ...

A fundraiser for a rare neurodegenerative disorder affecting a four-year-old girl with a connection to racing was highlighted during the 2025 Indianapolis 500. Helen’s Pink Sky Foundation was featured ...